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MisChif's
Chronic Fatigue Syndrome
Page

 

"Knowledge is power."
Francis Bacon

Welcome to my page about Chronic Fatigue Snyndrome
This is a new page, and will continue to grow as I find more
useful information to pass on.
(Last Update: 02/22/01)

I hope the links listed below help you in your search
for more information regarding the effects of Chronic Fatigue Syndrome (CFS)

Disclaimer:
The information and links provided on this page are NOT meant as medical advice.
I am not a medical professional; I am just another person who has been diagnosed with
Fibromyalgia and Chronic Fatigue Syndrome
who wishes to help other's in their search for useful information.
The information posted here is for  informational purposes only!

Always check with your personal Medical Professional
before trying any new regime
and  to verify it's validity and usefulness for yourself.


Words From The Wise

(Excerpt taken from Doctor Patient Communication Tips, courtesy of Quackwatch)

When consulting a doctor, try to present a detailed and well organized account of present symptoms and relevant past history. Before contacting the doctor, it may help to draw up a list to guide your presentation. If there is more than one problem, start with the most important one.  If you have a particular concern, bring it up at the beginning of your visit. If medications are being taken, either write down their names and dosages or bring the original bottles to the appointment.


 

 Chronic Fatigue Syndrome
A
About.Com Chronic Fatigue Syndrome & Fibromyalgia.
Guides, who are the heart and soul of this effort, mine the Web for the most  relevant and timely information, sorting through other Internet Web sites, discussion groups, and chat areas to find the most valuable links and lively conversations.

Abstracts from the CRISP Database Pertaining to CFS and Related Illnesses

Action Without Borders
(formerly called The Contact Center Network)

Alphabetical List of Specific Diseases/Disorders,
MIC-KIBIC at the Karolinska Institute. This is an amazing directory. (Note: CFS listed as  Fatigue Syndrome, Chronic.)

Ask Noah About: Chronic Fatigue Syndrome.

American Association for Chronic Fatigue Syndrome
http://www.aacfs.org/
(AACFS) is a non-profit organization of research scientists, physicians, licensed medical health care professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS research and patient care as well as periodic reviews of current clinical, research and treatment ideas on CFS for the benefit of CFS patients and others.

C
CEFCA
Chronic Fatigue & Immune Dysfunction Syndrome, Environmental Illness, Fibromyalgia, Candida,and Allergies (Food and Multiple Chemical Sensitivities).

CFIDS CFS FMS M.E. GWS Directory.

CFIDS Association of American, Inc.
http://www.cfids.org
If you have CFIDS/CFS, Myalgic Encephalomyelitis (ME), or a related condition
such as Fibromyalgia (FM), Chiari Syndrome (Arnold-Chiari Malformation), Gulf
War Syndrome (GWS), Orthostatic Intolerance, Neurally Mediated Hypotension
(NMH), Environmental Illness, Multiple Chemical Sensitivities (MCS), or
autoimmune disease, we encourage you to use the resources on this website and to join our efforts.

CFIDS & Fibromyalgia Health Resource
http://www.healthresource.com

CFIDS Information
A collection of internet links by Cindy Peterson.

CFIDS/M.E. Information
This Web site is provided by Mary Schweitzer, Ph.D.

The National CFIDS Foundation, Inc.
http://www.ncf-net.org

CFS Association-Chicago
http://www.enteract.com/~choward/

CFS Caregivers.
This site provides information and insight into the unique challenges that face spouses and partners of CFS          patients, as well as others who provide care for CFS patients.

CFS DAYS Home Page; CFS/FMS References.
Be it information on Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) or the healing  tonic of a good laugh at them, you've come to the right place . . .

CFS-Information International

CFS-NEWS
CFS / M.E. Information Page

CFS Radio Show
Transcripts - Dr. Mazlan interviews doctors and researchers about CFS (and related disorders) research and treatment. This site also has links to audio tapes of recent shows.

CFS Ring
The CFS ring is made up of homepages of ME/CFS Sufferers, Caregivers, Friends, Family, and ME/CFS Resources on the internet.

CFS/CFIDS
Melissa Kaplan's Home Page

CFS/CFIDS/ME/... Reference Guide© v1.22.

CFS/FM/MCS/Lyme Disease Information Pages
by Marilyn J. Kerr, RN.

Chronic Fatigue Syndrome
Issues pertaining to the diagnosis, treatment, and pathology of CFS by David A. Hall, M.D.

Chronic Immunological and Neurological Diseases Association (CINDA)
http://www.cinda.org

Chronic Pain, Chronic Fatigue Syndrome, Fibromyalgia, and other Medical Resources

CPAR Web Site
CFIDS Protocols and Research.

D
Directory of Scholarly and Professional E-Conferences; The 11th Rev..

Doug's CFS Site
An entertaining and humorous CFS site.
 

E
eMedical
Melbourne based medical Internet company, founded, owned, and run by Australian registered Medical Practitioners.

Empowerment Zone
A comprehensive site  encompassing the rights and freedoms of the disabled.

Educational rights of young persons with CFS:
http://www.wicknet.com/hosting/cfids

F
Family Village
.

A global community that integrates information, resources, and communication opportunities on the Internet for persons  with mental retardation and other disabilities, their families, and those that provide them services and supports.

Fog Clutter
An online 'zine dedicated to the writings of CFS sufferers.

 "FOR PARENTS OF SICK AND WORN-OUT KIDS"
http://home.bluecrab.org/~health/sickids.html
Frank Albrecht's  web site

G
Gossamer's CFIDS/FMS Site.
An eclectic set of CFIDS/FMS resources, humour, stories and information.

H
Healthfinder
The new federal government site for healthcare information and has links to all types of  health, support, and resource information.

I
ImmuneSupport.com
http://www.immunesupport.com
CFIDS & Fibromyalgia Health Resouce.  A good source of health information and high quality vitamins and supplements

L
"Listening to CFIDS".
Web site with essays, poems, short stories, etc. of PWCs which tell what CFIDS is all about in their lives. The point of the site is both to provide support to PWCs ("I'm not alone in what I feel.") and to educate healthy          people about what the illness is really all about.
 

Lois Randall's Chronic Pain, CFS, FMS and other Medical Resources Website

M
ME-NET

M.E. BBS Information Mailing Service
A voluntary project, run from Stenhousemuir in Central Scotland, which enables M.E. sufferers or their carers to have access to valuable news and information about M.E. from electronic networks such as the  Internet and Fidonet. Many people don't have access themselves, so the Mailing Service does it for them.
 

N
New Theory on Explanations for Chronic Fatigue Syndrome by Dr. Martin L. Pall
http://www.immunesupport.com/library/showarticle.cfm?ID=2976
02-13-2001 Editor's Note: Dr. Martin L. Pall, Ph.D., received his Ph.D. in Biochemistry and Genetics from Caltech after receiving his B.A. degree at Johns Hopkins University. He is a professor of Biochemistry and Basic Medical Sciences at Washington State University. He teaches medical students and is the chief instructor at Washington State University in the medical biochemistry course for first year medical students.

S
Sapient Health Network
Sapient Health Network is a web site dedicated to providing consumers with up-to-date health information.


Pediatric CFS

Association of Youth with ME

The CFIDS Association of America's Young Persons
With CFIDS (YPWCs) Website

For Parents of Sick and Worn-Out Children

Pediatric CFS from CFS-NEWS
(Also includes information on Discussion Groups and  Associations
concerned with Pediatric CFS and parents of youth with CFS.)

Kids with CFS
Many interesting links from your About.com CFS/Fibromyalgia Guide

 

Recommended Reading

CFIDS/Fibromyalgia Self-Help Program
Book:  CFIDS/Fibromyalgia Toolkit
http://www.cfidsselfhelp.org


 Social Security Disabilty
(click here to go to my SSD page)
 

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Thank you for stopping by!! Please come back again soon.

P.S. If you find a link that no longer works,
please send me an email so I can remove it!!

Thanks!
MisChif

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